‘The only hope we have’: Mother wants Oregon Medicaid to cover $300K drug for rare disease

Odin, 2, suffers from the rare disease Duchenne muscular dystrophy.

His mother, Jamie Saukko, is no stranger to the rare disease.

Both her brother and uncle died from it in their early 20s.

Source: ‘The only hope we have’: Mother wants Oregon Medicaid to cover $300K drug for rare disease